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September 13,2011,at 6:58 am

GOOD NEWS

Rosie is doing great. She is having a ct scan with dye today. They hope to discover no more abscesses in her abdomen. Will prolly remove the drain to the abscess above her bladder. She can’t eat anything till after the CT scan. She is drinking dye mixed with Crystal Light Ice Tea. She says it is Yucky.

IF everything goes well she will get to go home tomorrow!!! YAY! Woo-Hoo!

They stopped the TPN feedings and fluids. Dr Adams (infectious disease doc) says Rosie will no longer need any antibiotics. So she hopefully,will no longer need a picc line.

I am praying all is well and that WE get to go home!!!

I had severe nausea for a few hours last night. Also having a sinus/allergy attack. Woke up at 4 am feeling really bad. Doing ok now.

~Angela

September 9,2011,at 7:02 am

Rosie Update

Rosie is feeling pretty good this morn. She slept well last night.

BUT she needs a blood plasma transfusion prior to putting a drainage tube in a newly discovered mrsa abscess near her bladder. Have to get her PT and INR levels back to normal (she is on coumadin to prevent blood clots and her blood is too thin to do any surgery…(like aspirating and draining abscesses) prior to installing the drain tube. We will be here in the hospital all weekend and possibly longer.

It is our 15th straight day in the hospital. UGH.

I had a tossy and turny night. Achy thighs. Gonna rest most of the day. Chronic fatigue syndrome/Fibromyalgia sucks!

Rosie ate rice krispies and milk for breakfast …. kept it down. She did spit up clear foamy liquid after eating…but the food stayed down. Telavancin antibiotic causes foamy urine…. wondering if it also causing foamy vomiting.

Hope they can get her blood plasma levels back to normal quickly so they can drain that bladder abscess. I am sure she will feel better once they get rid of it. Still on Telavancin,Flagyl,fluids,Zoran,Phenergan ,Domperidone and TPN feedings…as well as all her normal meds.

Prayers appreciated. THANKS!

~Angela

September 2,2011,at 5:12 pm

Rosie Update…

My sis Rose Lee Goode is not doing well. Nausea,vomiting,and diarrhea. Still in the hospital. On all sorts of meds,antibiotics,and IV feedings. Unable to eat. She feels so bad. I pray that God heals her quickly and totally. She has lost 53 lbs in 38 days. Please send healing prayers her way. THANKS!

~Angela

September 2,2011,at 6:06 am

Rosie Update

Rosie has had nausea and vomiting all night and into this morn. Taking Zofran IV or it.  Vomiting is either her meds or clear foamy liquids. Not vomiting any food. Also having diarrhea. Having pain in her 2 drain areas from the MRSA abscesses in her lower left side. She is on Lortab and morphine via IV.

Dr Boyce said Rosie had a small piercing from the abscess into her colon. Not sure why. But may be from the CT needle abscess fluid withdrawal. Or may be related to diverticulitis. He called it a possible fistula. Will be here in the hospital a few more days.

Wants her to EAT all she can today. She has some peanut butter and strawberry jelly so far. Gonna try some scrambled egg next.

Gonna get Dad to bring me some clothes. I have 3 dresses here which I have been hand washing in shampoo and hanging to dry in the shower. Dad is also bringing us Rosie’s protein shakes and vitamins. Wish he could Sneak in our Cairn Terrier. Smoki Poki Loki. He has been missing us so bad that he barely is eating. Rosie and I talk to Smoki and our cats Jazzi ( long haired Siamese Ragdoll mix),Tater ( Ginger Red Tabby),and Punkin (Siamese) by speakerphone a few times daily. They all come to listen to us. Dad says they all get so happy to hear our voices.

Wish we could talk to Panther and Daisy. Panther ( Large Black/Gray Cat)  is our outdoor cat. He is a stray cat and has taken up with us. He has been with us for almost 2 years now. For the last 6 weeks we have had a big stray dog outdoors whom we named Daisy . She is painfully thin and Dad is feeding her. Seems so sweet.

Gonna head to the cafeteria now. Getting bored with food now. UGH.

Please continue to pray. If your praying pleaselet us know at http://angelarose.com/prayers-for-rosie/ THANKS for all your prayers.

God Bless,

Angela

 

 

August 31,2011,at 6:36 am

Rosie Update

Rosie had a good night. Feeling well today. Eating fairly well.. would do so much better IF the food was palatable. She had a scrambled egg,strawberry jelly,and milk for breakfast.

Dr Boyce ( gastric bypass surgeon) and Dr Adams (infectious disease doc)  has visited Rosie this morn. Boyce is aiming for Rosie to get released by the weekend. Dietician needs to add up her protein intake and report to him. He has ordered another abdominal ct scan to check for inflammation and abscess of her tummy. Dr Adams is ordering her IV vancomycin for home use as well as flagyl orally.

Rosie has had very minor nausea the past few days and has kept ALL her food and fluids down. Praise God.

She sat up for an hour in her wheelchair yesterday. Aiming for 90 min today.

She is still receiving TPN nutrition feedings by IV. I assume they will continue for a few days once she arrives back home.

We are not certain of Rosie’s highest weight but assume she has lost around 100 lbs so far. She is still weak and does not set up straight. So the weight loss is not that noticeable yet. Once she can sit up better and wear clothes other than extremely loose garments( due to her hernia wound and her MRSA drain tube) all her weight loss will be greatly visible.  She was wearing size 32/34 pants. Prior to surgery she was down to a size 24. She has lost 40+ lbs since so I assume she will be able to wear even smaller pants as soon as the wounds heal. She has a new wardrobe at home waiting for her. We purchased all sorts of clothes prior to surgery. She has some really sexy clothes. My sis is gonna be a skinny minny SLUT! LOL.. Just like her sis. LOL.

My chronic fatigue syndrome has a major flare-up. So tired. Really severe shoulder…thigh…hip…aches and pings.  I slept so-so last night. Gonna take a nap with Rosie shortly.

Rosie is up every 90 min to urinate at night. She uses a bed pan. The nurse assistants take care of it at night and I do it during the day.

Been having panic attacks. Just stressed and feeling lonely. Missing John. Even though we text and email daily I haven’t seen him LIVE on cam. He is gonna go on a holiday to Spain with his sis. Gonna miss him even more.

I am hoping Rosie gets released tomorrow.

Thanks for all your prayers,support and well wishes.

God bless,

Angela

 

 

 

August 26,2011,at 2:29 pm

Abscess Removal

They removed all sorts of fluid from Rosie’s abdomen. Rosie said they told her it was infection. Will know what kind in 2 to 4 days. Takes that long for the bacteria to grow to test it. Was told she would start feeling MUCH better. She has a drain. Looks bloody with yellow particles mixed in. Getting ready to reattach her to her wound vac to the hernia repair. She will start TPN feedings tonight through her IV. I am doing ok. Slept 3 hours last night. TRYING to nap today BUT not succeeding. I had some yummy artichoke and sun dried tomatoes pasta today. I love the cafeteria here. They even have SUSHI…which I am too afraid to try. Would not be if it was in a fancy sushi restaurant but not sure how good it would be to attempt it in a Hospital cafe. Gonna snack around on a Strawberry Spinach Salad tonight. So yummy.

Thanks for praying,

God Bless You,

Angela

August 24,2011,at 12:47 pm

Rosie is feeling better…

Dr Wilhoite is scheduled to perform a endoscopy on Rosie. Monday @ 1:30. With possible pyloric balloon dilation. Checking for stricture,scar tissue and/or ulcers.

Rosie started feeling much better last night. Has been able to keep down a few Tablespoons of applesauce,oatmeal,and mashed taters so far. Much more alert. Looks so much better.  Still on iv of tpn nutrition feedings 12 hours a day.

She goes to the nutritionist tomorrow. Will get weighed. Excited to see how much she has lost. Gastric Bypass was over a month ago. I bet she is down 25-50 lbs. Will see.

I am sending all my love and prayers to John. God knows the situation and I pray it all turns out for the best.

Getting drowsy…. Zzzzzzzzzzzzzzzz…..

Continue to pray. Thanks!

~Angela

August 21,2011,at 12:34 am

Update on Rose Lee

Rosie is still not feeling well.

Nasueaous.

Vomiting.

Can only keep down water.

Pukes up her meds as well as her vitamins and protein shakes.

She is getting feed by TPN IV Infusions with added vitamins that are customized according to her needs.

Rosie hates feeling so bad and I hate seeing her in pain.

She is having tender aches and pains all over her tummy region.

She is exhausted.

Just pray that she gets some rest tonight and wakes up feeling 100% better.

Her home RN Pete is coming tomorrow to change the wound vac on her OPEN hernia repair wound. Also doing labs on her.

I am doing all the IV infusions by myself now. IF she does not start eating and keeping foods and her pills down she will have to have a feeding tube inserted.

Rose’s home health aides Peggy and Dina both are coming tomorrow…staying from 2 to 9. I think that is the times. I am so forgetful. I hope to get some rest tomorrow. Peggy and Dina are like family to us. We all adore them both.

Rosie sees her Family doc,Blake Melling,on Monday in regards to her right outer thigh pain.

Tuesday she sees a Gastroenterologist…Dr Wilhoite.

Dr Boyce,the surgeon who performed her Gastric Bypass bpd/ds thinks Rosie may have a stricture…aka blockage. He kinda hopes so since that would explain her nausea and the reasons why she can’t keep things down. Rosie will have an endoscopy prolly this week. HOPEFULLY.

Thursday she sees her nutritionist.

Busy week. Just hope the doctors can identify and help what ever is causing her to be so sick.

She has such rawness and burning along her entire gastric tract. I know it is prolly inflamed due to all the vomiting. Poor baby.

She is urinating much better. Still having small runny bowel movements.

Her glucose jumped from 85 to 190 today…

Rosie and I napped for 4 hours today. She is sound asleep now. I am gonna have to wake her to test her glucose before I go to bed. Trying to wait till this 12 hour TPN IV infusion completes its job. Should be ALMOST done.

All our pets are worried about Rose. Punkin,our siamese cat,won’t leave Rosie’s side. Tater,Jazzi and Smoki all are very careful when they get near Rose. They know she is sore from the hernia repair.

As I cleaned and repacked her open drain site,which tunnels a few inches inside her stomach…Rosie seemed to be in more pain in that region that she had been as I pushed the packing tape inside of it. Bloodier as well.

Both of her IV Picc lines flushed with saline smoothly today. They had been causing trouble for me as well as the nurses.

You should see all the medical supplies in our house. Rosie has boxes stacked for wound care items in her bedroom. We keep the IV Transfusion items in the fridge or on the kitchen table for easy access.

I have been eating fairly healthy but with stress and fretting about Rosie I have indulged in way many more carbs than I normally would.

Had some nice conversation with my best friend John this past week. I so look forward to seeing him for our daily webcam chat. We support one another and enjoy our relaxing time together. Even IF it is only for a few minutes. I have been so wore out lately that I sometimes miss chat and nap instead. I woke up this morning aching to see him. Just seeing him live on cam is such a blessing. Comforts me tremendously. He is having dinner tomorrow at his sisters. Pray he does not overeat or get heartburn…I know he will be over indulging in curry dishes as he always does.:-0

Prayers to and for my cousin Becky. Praying that the docs can determine the nature and cause of her edema and leg pains…and that they are treatments for them. She has appt to see a cardiologist and a rheumatologist.

I have been having pings and soreness on the left side of my navel region. Not sure what is causing that.

Having major fibromyalgia brain fog. Constantly forgetting things and having to remind myself often. Having to make lists to keep track of things…Also having all the normal pains and soreness in my legs and shoulders. Also been having some neck stiffness.

My tummy is doing better than it was. I am on Imodium,Bently,and Welchol now for my IBS. Having less frequent ‘accidents’now.

My nerves are frazzled. So stressed. Been depressed and crying often…which  I had stopped doing. Having severe panic attacks with having to deal with all the nurses and medical field persons. Seems like I am on the phone constantly with someone…. and I detest talking on the phone with a passion!

I MAY go out tomorrow grocery shopping. I HATE doing it alone. I more or less run through the store grabbing stuff as quick as possible and getting out of there before having a heart attack.

Just so scared for Rosie. Just pray that she can start eating again and keeping food and fluids down. Not sure what to do when she pukes up her meds. Will discuss with Dr Melling on Monday.

Time to turn off her IV pump,check her sugar,and get to bed.

Prayers appreciated for Rose. THANK YOU.

God Bless,

Angela

 

 

 

 

August 15,2011,at 3:07 pm

Rosie is still sick…

Rosie still is vomiting. So far she has been able to get down a few of her meds and keep them down. She vomited her up vitamins. Have not even tried any protein shots today. Will try later. She is not able to drink much due to nausea. Barely urinating.

Doctor is starting her on TPN (IV Feeding) tomorrow. http://en.wikipedia.org/wiki/Total_parenteral_nutrition Her gastro-intestinal track needs to rest and recoup and TPN will allow that.

Pray she gets better soon. Worried to death about her.

I Love ya Sissy,

~Angela